Tuesday, January 5, 2010
Baby Sarai Update
Sarai is doing very well. She was moved from the PICU back to the NICU on December 19th. Each day that goes by we see more and more of our Father and His great Love for us all. Each day brings another step towards going home, her healing and recovery.
About 2 days after returning to the NICU she had her catheter taken out, her dialysis tube taken out and was taken off the ventilator! So close to being tubeless. On Christmas morning her last tube was taken out...the chest tube...Hooray it was such a great gift to her and us. She was left with one IV running her nutrients and the morphine which was slowly being weaned down. She was getting breastmilk through a feeding tube and all was going so well that they decided she could be moved up to the wards or floors as they say. This is just a normal hospital word, however when we got there I had a very uneasy feeling. Like "were we ready for this?" She was in a shared room with another child and the child's dad. We were not ready or even really knew that we could room in with her. So leaving her that night was very hard, maybe even harder than her first week of life leaving her in the NICU. The reason being our little princess was in this room and the nurses were in the hall! We have been so used to her having 24 hour care with a nurse at her bedside! So I am sure you can imagine to some extent how we were feeling.
They did go up on her morphine again and added another med to help with blood pressure while they give her time to strengthen. They began to wean the morphine again yesterday and will take it slow with weaning over the next week. Today she is to be extubated (be taken off the ventilator) again. YAY, this is exciting for us cause when she is on the vent we don't want to hold her...as I can see this tube being pulled or something and the fact that it takes a nurse and a respiratory to get her on and off our lap!
So we hit a bump, but we are over that bump and refuse to dwell on it and get stuck. We must keep looking forward with our heads held high, continue praying and praising!!
She is so content and makes such great eye contact. She communicates with us using her eyes and has shown us ta few smiles here and there. She is such a trooper. One thing she has made known to us all is her temper!! I told her brothers they better not make her mad....lol When she is mad there is no working up to it, she instantly turns bright red and sometimes purple, we try to console her quickly with prayer, singing and stroking her hair. The quicker we can get her to calm down the better cause they like to pull out the sedatives, so if we can get her to calm down then she doesn't get them. The one morning she got so mad at the nurse and she pulled her feeding tube out!! The nurses comment on how calm she is when we are around so we take turns going over to be with her so she doesn't have many long stretches without one of us during the day. One of us usually stays until late evening to get her to sleep and she is then quite settled throughout the night.
We look forward and go forth towards our goal of going home soon. It is our hope and prayer to be able to take her home by the end of this month. But we will not rush her, she needs a the rest she can get for that is when the most healing takes place. It is so amazing how God has created these little tiny ones' bodies, cells and tissues to regenerate and fix themselves so quickly!! His creation is so amazing!
Thank you Father for our sweet baby girl, thank you for her continued recovery and healing. Lord thank you for the surgeons and the wisdom you have shown and given them, thank you Father for the nurses and doctors who look after all these children and thank you for the compassion, love, wisdom and grace you instill in them. Lord bless each one of these doctors, nurses and surgeons, bless each parent that is going through the same things as we are, bless each child and bring great healing to them all! Lord Bless each person who is standing with us in prayer and agreement Father for our little girl and Lord we thank you for each one of them. Thank Lord for the awesomeness of all you do all you show us and all ways in which you bless us Lord. Send forth your angels and let us here the ROAR!!!! In the loving name of Jesus
Thank you to you all for your continued support and prayers be blessed!!